Was suddenly and surprisingly called to the oncologists a week earlier than they had planned. 4 hours with 5 different doctors and the surgeon who removed the staples from my head. Pretty good overall after 9 days.
He was very happy and positive with that. Says my speaking was excellent. I was surprising him well for health - recommended I go back to the gym regularly already. My intelligence? Very, very high since his surgeries on this topic often have far more concerning outcomes from the people treated. I was said to be shockingly good. But he did recommend some realism and expectations. Realistic is 18 months of probability. That's the likelihood. Not essentially how it will happen. Just pretty standard.
I mentioned I had 2 friends who i have - Glio Blastonoma - which both lasted 18 months. It's not assured, since there are now several things we can try and test. I said "I'm 100% in for anything immediately and I expect the best!" They like my attitude! But they also asked me to be a realist. I said fine - I've done that already. But I'm not going to just give up too easily. I'll expect more and try more for whatever can happen and expect!
I can head back to work already, technically. I will shift to 1 day a week for 6 weeks for now. After 6 weeks of radiation and chemo, I have to adopt some other tests and treatments that are merely "looks at what MIGHT help a little." I can work while having that. One will require shaving all hair off and adopting some electronic treatments long term. There are other things which I may engage, as well.
But the doctors, as happy as my push for happiness, positiveness, openness and anything good - they loved that I wasn't crying or upset. They were also "Let's just be open too about what reality seems to indicate."
I replied "fine - my brain is actually talking to me - and I'm fine with reality." They asked what I was being told by the brain. For the first time I repeated things that it keeps saying. They said it's correct - and that it's not terrible to expect even if the brain speaking may be driven by medication....doesn't mean the brain is wrong.
It rarely has been, of course, which is why I always loved writing and pushing attitudes some people even today are disgreeing with me about (incorrectly mostly).
So that's what we know for now. We shall learn more.
Boys came home, we've had some talks. We are being open and realistic. It will all be very, very hopeful and I am pushing myself hard already!
All the best and while 18 months will be expected, I'll love whatever we have. Always the best!!!
